This is my first attempt at a blog. This is my first blog I have ever done. So here it goes. Most of you probably don't know me, so I will tell you what has been happening in my life as of right now. I have 12 diseases, and I also have some developmental delays, which makes me what is called a self advocate. I have had 25 operations so far, and I am going to have to have number 26 soon. With my bone disease, my bones eventually wear out and stop working. In 2004 that is exactly what happened. My bones in my jaw eventually stopped working, and disinegrated, and there was nothing left of them. Meaning for five years before my transplant I could not eat a thing, just mushy foods and liquids cause I couldn't chew. I went to North Carolina in 2004 for total titanium implants in both of my jaws. Keep in mind that I live in BC. Canada.
Now the recent issues I am dealing with is: In the Summer time, I was staying with a care giver while my parents were away. This caregiver knew about my bones, but decided to stick my dvd player in my back pack without telling me. She handed me the back pack and I went to put it on my back and it swung and smacked me in the jaw. Well as it turns out, the real bone holding my titanium implant together has broke. So right now there is nothing holding the titanium implant. I am in so much pain. Anyways, my doctor that did the transplant, in North Carolina, well he has now moved to Dallas Texas. So in December my mom and I are making are first trip to Dallas. First we have to go down for a ct scan and to see the doctor, then we have to come back home, and go back for the operation. So that is where we are at right now. Mean while I am in so much, I can still talk though which is amazing.
To find out more about my story you can go to my site:
http://www.caringbridge.org/visit/champ291
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